Thursday, January 19, 2012

Hello :) I wanted to post an update here, because people have been asking me about orders. I realize I haven't written anything since my last post about Ellie being born, back in April of 2011.

After nine weeks in the NICU, we realized that something was wrong with our baby girl, and in August, a couple months after coming home, she was diagnosed with a rare genetic disorder called Prader-Willi Syndrome. We believe she has a relatively mild version of the disorder, but at present her night breathing is seriously affected, and she will be spending the next three months or so in the ICU.

Due to all the time we spend with her at appointments, and in hospital, it is highly unlikely I will be reopening my shop in 2012, although I hope to one day start up my business again.

If you are here looking for custom baby bedding, I would suggest you head over to Etsy.com, and check out RockyTop Designs, or BirdsHaveFlowers.

Blessings,
Susie and Ellie


3 comments:

Jayna said...

I just left you a comment on your facebook page and wanted to let you know that if you need anything, please let me know! I hope you are doing well and also your gorgeous baby girl. Love to all
-Jayna, RockyTop Design

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